So, I think that we have received all of the bills for Mitchell's trip to the hospital, including the follow-up MRI he had on March 19
th. I spent a little time this morning adding it all up and I reached a total of $25,291.34. The most surprising charge to me was the
lifeflight. Based on my sister,
Marenda's experience with her newborn son being
transferred from one hospital to another (less than 5 miles apart) in an ambulance, I expected the helicopter (the bill states it travelled 38 miles) to cost $15-20,000. It actually came it at $8,929.65. Much cheaper than I'd expected, but still one
pricey flight.
Other interesting amounts:
- The stay at Primary Children's (w/out doctors' fees) came to almost as much as the helicopter ride.
- The Brain CT came in at $482.12
- One dose of the medicine to stop the seizure--$162.80
- MRI (including sedation and having the Dr. read the results)--$2,690.60
- Having Insurance pay off the bulk of all these bills--Priceless! (Well, not actually priceless since we do pay every month to have the coverage, but I couldn't resist).
On a very mercenary note, I'm really glad this happened fairly early in the calendar year because we've met our out-of-pocket maximum for Mitchell, which means the insurance will cover 100% of any other medical expenses he incurs in 2008--not that I'm wishing to HAVE any more medical expenses, but it would really have been frustrating if this had all happened, say, the last week of December and then we'd have to pay for the follow-ups in January.
There is one more big medical bill we'll have for Mitchell this year--another follow-up MRI. On the 19th of March, M and I went back to Primary Children's for an MRI just to follow-up and make sure nothing was wrong. M had been acting so great that I really hadn't given this procedure much thought, and fully expected to get a result of "everything looks great." It was a challenging day for several reasons. When the Nurse called the day before the procedure to get M's medical history, etc., she indicated that his MRI was scheduled for 9:30 am instead of the 10:15 time we'd had written on our discharge papers from the hospital. I arranged to drop Caleb off at Marenda's earlier and we arrived right on time for our 9:30 appointment.
(I do have to pause here and tell how I was completely unprepared for the emotionality I experienced just walking through the doors of the hospital. I felt so foolish, but it was all I could do to keep from bursting into tears because I felt all the emotions of those days we spent there, just come rushing back to me--almost like they'd been waiting for me at that revolving door, and the minute I came through, they landed on me.)
Back to the story: While I was filling out papers, a very nice tech came and politely told me I was quite early for my 10:15 appointment. I explained what had happened, and after checking some things out, she told me they'd do their best to get M in as soon as possible. I'm not quite sure how it ended up working out, but I think one child who was supposed to go before us was late, so we did get bumped up a little. (Keep in mind, that M had to have IV sedation for this procedure which meant he'd not had any food since the night before so I appreciated anything they could do to speed up the process.)
After the scan was over, I was sitting by M's bed waiting for him to wake up when the Dr. who reads the scans came out to talk to me. He began by saying, "Well, we didn't find any tumors or bleeding or any really bad stuff." His tone and everything else made my heart stop waiting for the "but." He indicated that they had noticed (and I think these were his words) "some patchiness in the white matter of the brain." "Ok," I said, calmly while my brain was screaming, "WHAT?! There are holes in my baby's brain!" He indicated that it looks like what they see in patients with MS, but since children don't get MS, he didn't think that was it. After discussing the seizure with me he said that it his best guess would be that the virus M had actually caused inflammation in this part of the brain, which caused the brain to seize. The "patchiness" he guessed was the aftermath of that inflammation. Then he told me they'd need to see him back after his 2nd birthday, when, if his guess is right, the results should be pretty much normal. In the mean time he told me not to spend too much time worrying about it and went away.
It was certainly not the result I'd wanted or been expecting, so it took me several days to kind of be "ok" with it all. Naturally, I went home and googled "white brain matter" but many of the hits were dealing with child abuse, or "traumatic brain injury" so I didn't search too far. What I did find out, though, bodes well for Mitchell. From what I understand, the white matter is in the "core" of the brain, and it is where the connections between different parts of the gray matter are formed. Unlike gray matter damage, white matter damage (especially in children) generally heals very well--they simply grow new connections. From everything I've observed in Mitchell, it doesn't seem that he has any lasting effects from the seizure so this is probably nothing to worry about. But until October, there is still a small, back of my thoughts, lingering concern.
So, my answer to all this (I felt like I needed to take some action just to make me feel better) is that I'm going to be germ-phobic for a little while. Mitchell is now 18 months, but I don't plan to send him to nursery until I feel like children are generally healthier. I've also stopped going to my Book of Mormon class because of the same reason--the nursery. Unfortunately, I'm not sure it's working because M is sick even now. His nose has been running like crazy and he started on antibiotics yesterday for an ear infection. He's not nearly as cheerful during the day and I'm not sleeping that well at night because I keep startling awake with irrational fears about his well-being (and having the monitor right by my ear isn't that much of a comfort--if he's quiet, I worry he's too quiet. If he's coughing, I hold my breath until it calms down). I am really really ready for warm weather and well children (not that they necessarily are related, but they both should do wonders to improve my mood:-).